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ASERT
Resource Center

The ASERT Resource Center serves as Pennsylvania’s leading source for up-to-date and accurate information and resources for individuals with autism, their families, the community and the professionals who support them. Contact the ASERT resource center to speak with a resource specialist who can help you learn how to discover and access resources in Pennsylvania.

When should I contact the Resource Center?

If you have additional questions about information you found on PAautism.org or would like to invite an outreach specialist to attend an event, conference, or support group, someone at the resource center can assist you.

Be sure to visit the following pages below here on PAautism.org to find helpful information. If you still have additional questions, contact the Resource Center.

By phone
1-877-231-4244

Are you located outside of Pennsylvania?
The ASERT resource center is focused on specific resources in Pennsylvania. If you are in another state, the resources specialists will not be able to help you. Please visit the resources section of PAautism.org, as some of the online resources may be applicable to residents of other states.

           

Physical Health Resource Bundle

 

Individuals  with autism often have additional physical and medical health conditions that can have a negative impact on the individual. Some of the most common physical and medical health conditions for individuals with autism are seizures, sleep problems, gastrointestinal issues, and obesity-related conditions. This resource bundle provides resources by condition as well as general physical health resources for individuals with autism, their families, and providers.

Special Needs Units (SNU) Information

This information sheet from ASERT provides information on Special Needs Units and the supports and services they can provide to individuals receiving health care through a Physical Health Managed Care Organization (PH-MCO). 

Autistic Self-Advocacy Network (ASAN) Transition to Adulthood: A Health Care Guide for Youth and Families

The Autistic Self Advocacy Network (ASAN) has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood.

AASPIRE Healthcare Toolkit: Patient Centered Care Tools for Autistic Adults

This web site has information and worksheets for adults on the autism spectrum, supporters, and healthcare providers. It focuses on primary healthcare, or healthcare with a regular doctor.

The resources on this site are meant to improve the healthcare of autistic adults. They were made by the Academic-Autistic Spectrum Partnership in Research and Education (AASPIRE) through a series of research studies funded by the National Institute of Mental Health. AASPIRE hopes that you will find these resources helpful.

Autism Speaks Health Toolkit

This resource from Autism Speaks provides information for individuals and their families about physical health, mental health and sexuality needs as they transition to adulthood. Tips, resources and general areas of consideration are included. 

Health Care Quality Units (HCQUs)

The Health Care Quality Units (HCQUs) work to support and improve the health information and knowledge for the intellectual disabilities community service system by building capacity and competency within the physical and behavioral health care systems as well as the stakeholders of the ID system. 

PCHC Management of Pain for People with Intellectual Disabilities And Other
Developmental Disabilities

This booklet was written as a tool for all those supporters who may have watched a person they care about experience pain while they felt helpless and unable to assist. This booklet was designed to replace the helplessness with support and offer relief from pain.

PCHC Health Care Mentorship Program

This brochure provides information about the Philadelphia Coordinated Health Care (PCHC) Mentorship Program.

Social Story: Going to the Doctor

This social story describes the various aspects of going to the doctor for individuals with autism.

How to Ease Anxiety for Adults with Autism during a Doctor’s Visit

This article describes what helps and hurts doctors' experience for adults with autism, which also includes a real life story of a young adult on the spectrum. There is a newly funded research study by Occupational Therapist, Leigh Stein Duker. The goal of this study is to improve challenging primary health encounters of adults with autism.

Health Care for Adults with Disabilities – Tips for Primary Care Physicians & Nurses

Adults with intellectual or other developmental disabilities often face barriers to good health care. Many primary care providers do not have much experience treating individuals with intellectual and developmental disabilities (IDD). This tip sheet,  prepared by the Vanderbilt Kennedy Center, will explain ways that medical professionals can better care for people with developmental disabilities.

Accompanying an Individual to the Doctor – Tips for Direct Support Professionals & Other Caregivers

Adults with intellectual or other developmental disabilities may have difficulties explaining their symptoms or expressing pain, so the health care provider may have trouble determining the presence of an illness or injury. Having a direct support professional who knows the patient, knows how the patient communicates, and knows some medical information about the patient can be vital to helping the primary care provider effectively treat the patient. This toolkit, prepared by the Vanderbilt Kennedy Center, will help direct support professionals & other caregivers in working with their clients when going to the doctor.

Making Doctor's Office Visits More Successful for Patients with Autism (video lecture)

Dr. Frankel is a pediatrician with extensive experience interfacing with patients and families of patients on the Autism spectrum. The goal of this video lecture is to bring together the worlds of doctors and parents in order to promote better quality healthcare for individuals on the spectrum.

Physician Education in Developmental Disabilities (PEDD) Webinar Series

The American Academy of Developmental Medicine and Dentistry (AADMD) offers a free, 12 credit-hour webinar series based on the first internationally vetted curriculum in Developmental Medicine created in the United States. This series is designed to enhance the practice skill of primary care physicians and residents who would like to provide better care to their adult patients with developmental disabilities.

CAR Autism Roadmap Resource: How Common is Sleep Disturbance in Children with ASD?

This resource, prepared by the Center for Autism Research (CAR), provides information about sleep disturbance patterns in children with ASD.

CAR Autism Roadmap Resource: How to Promote Sleep in Children with ASD?

This resource, prepared by the Center for Autism Research (CAR), will help families to find strategies for promoting sleep in children with autism.

ASAT Online Resource: Regulating Sleep

This article, written by the Association for Science in Autism Treatment (ASAT), provides tips on how to regulate sleep in children with autism.

Interactive Autism Network at Kennedy Krieger Institute Resource: The role of Neurologists in Treating Children with Autism

To help educate patients and families, Dr. Deepa U. Menon answered questions from the Interactive Autism Network (IAN) about the role of neurologists in treating children and youth with autism.

If Your Child Has Seizures

This guide, prepared by Johns Hopkins Medicine and Kennedy Krieger Institute, is for the parents, families, and caregivers of newly diagnosed children with epilepsy or a seizure disorder.

Autism, Epilepsy & Seizures: How to Recognize the Signs and Basic First Aid When You Do

This resource provides information on the signs of autism, epilepsy & seizures and the first aid after recognizing these signs. This resource was prepared by the Daniel J Fiddle Foundation.

Seizures and Autism Spectrum Disorder

This article, written by the Center for Autism Research (CAR), provides information on seizures in individuals with Autism Spectrum Disorder (ASD).

PCHC Health Promotion Activities Plan: Seizure Disorders

This resource is to assist in developing a health promotion activity plan for individuals with seizures. This resource was developed by Philadelphia Coordinated Health Care (PCHC).

Gastroenterology and Autism Spectrum Disorder

This article, written by the Center for Autism Research (CAR), provides information on gastroenterological problems in children with Autism Spectrum Disorder (ASD).

Bowel Training for Individuals with Autism

Lingering issues with bowel training are common in individuals with autism, even if urination training has been successfully completed. As with urination training, the key to success in bowel training will involve behavioral assessment, data collection, and behavioral teaching techniques. This article provides tips and treatment strategies that families can use  for the bowel training for individuals with autism. This article was published by the Association for Science in Autism Treatment (ASAT).

PCHC Constipation Training

Philadelphia Coordinated Health Care (PCHC) prepared this training to assist with understanding:

-  The term "constipation" and some signs or symptoms of constipation;
-  The causes of constipation;
-  How to prevent constipation;
-  The importance of monitoring;
-  Other health-related problems.

PCHC Gastrointestinal System Training for Adults with Intellectual Disabilities (I/DD)

This presentation, prepared by the Philadelphia Coordinate Health Care (PCHC), was designed to:

-  Provide and overview of the gastrointestinal (GI) system;
-  Assist with understanding the changes associated with aging and GI system;
- Provide information on common GI health issues in older people with intellectual and developmental disabilities (I/DD).

HCQU Fact Sheet on Constipation

This fact sheet on constipation provides information on the causes of constipation, prevention and treatment strategies, and medication used for treatment of constipation. Milestones Health Care Quality Units (HCQU) Northwest prepared this resource. 

PCHC Health Promotion Activities Plan: Diabetes

This resource is to assist in developing a health promotion activity plan for individuals with diabetes. This resource was developed by Philadelphia Coordinated Health Care (PCHC).

PCHC Health Promotion Activities Plan: Hypertension (High Blood Pressure)

This resource is to assist in developing a health promotion activity plan for individuals with hypertension (high blood pressure). This resource was developed by Philadelphia Coordinated Health Care (PCHC).

PCHC Diabetes Training

Philadelphia Coordinated Health Care (PCHC) prepared this training to help identifying:

- Different types of diabetes;
- Signs and symptoms of diabetes;
- Ways to support someone with diabetes;
- Complications of diabetes.

CDC Disability and Health Resource: Disability and Obesity

This article, prepared by the Centers for Disease Control and Prevention (CDC), gives insights into what weight ranges constitute overweight and obese for children and adults, and the challenges that people wit disabilities face when it comes to eating healthy, controlling the weight, and being physically active.

Academy of Nutrition and Dietetics Resource: Autism Spectrum Disorders (ASD) and Diet

This article provides an overview of the eating habits and food concerns for children with Autism Spectrum Disorder (ASD) and suggests several nutrition strategies for dealing with them.

The Arc Autism Now Resource: Nutrition

This article provides information on nutrition recommendations for eating healthy, dietary requirements for adults with autism, prescribed medications, and obesity.
This article provides information on nutrition recommendations for eating healthy, dietary requirements for adults with autism, prescribed medications, and obesity.

Plan 4 Health Toolkits

These toolkits offers a snapshot of reports, webinars, toolkits, community examples, videos, podcasts, and more about active living, nutrition and health in all planning policies from Plan4Health. They can be read cover to cover or looked at in pieces, as each page can be a stand-alone document to inform and educate about active living strategies. Additional information about the Plan4Health coalitions, including mini-webinars, videos, and podcasts, is available on the Plan4Health Peer Learning Network.



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