This information sheet from ASERT provides information on Special Needs Units and the supports and services they can provide to individuals receiving health care through a Physical Health Managed Care Organization (PH-MCO).
The Autistic Self Advocacy Network (ASAN) has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood.
This web site has information and worksheets for adults on the autism spectrum, supporters, and healthcare providers. It focuses on primary healthcare, or healthcare with a regular doctor.
The resources on this site are meant to improve the healthcare of autistic adults. They were made by the Academic-Autistic Spectrum Partnership in Research and Education (AASPIRE) through a series of research studies funded by the National Institute of Mental Health. AASPIRE hopes that you will find these resources helpful.
This resource from Autism Speaks provides information for individuals and their families about physical health, mental health and sexuality needs as they transition to adulthood. Tips, resources and general areas of consideration are included.
The Health Care Quality Units (HCQUs) work to support and improve the health information and knowledge for the intellectual disabilities community service system by building capacity and competency within the physical and behavioral health care systems as well as the stakeholders of the ID system.
This booklet was written as a tool for all those supporters who may have watched a person they care about experience pain while they felt helpless and unable to assist. This booklet was designed to replace the helplessness with support and offer relief from pain.
This brochure provides information about the Philadelphia Coordinated Health Care (PCHC) Mentorship Program.
This social story describes the various aspects of going to the doctor for individuals with autism.
This article describes what helps and hurts doctors' experience for adults with autism, which also includes a real life story of a young adult on the spectrum. There is a newly funded research study by Occupational Therapist, Leigh Stein Duker. The goal of this study is to improve challenging primary health encounters of adults with autism.
Adults with intellectual or other developmental disabilities often face barriers to good health care. Many primary care providers do not have much experience treating individuals with intellectual and developmental disabilities (IDD). This tip sheet, prepared by the Vanderbilt Kennedy Center, will explain ways that medical professionals can better care for people with developmental disabilities.
Adults with intellectual or other developmental disabilities may have difficulties explaining their symptoms or expressing pain, so the health care provider may have trouble determining the presence of an illness or injury. Having a direct support professional who knows the patient, knows how the patient communicates, and knows some medical information about the patient can be vital to helping the primary care provider effectively treat the patient. This toolkit, prepared by the Vanderbilt Kennedy Center, will help direct support professionals & other caregivers in working with their clients when going to the doctor.
Dr. Frankel is a pediatrician with extensive experience interfacing with patients and families of patients on the Autism spectrum. The goal of this video lecture is to bring together the worlds of doctors and parents in order to promote better quality healthcare for individuals on the spectrum.
The American Academy of Developmental Medicine and Dentistry (AADMD) offers a free, 12 credit-hour webinar series based on the first internationally vetted curriculum in Developmental Medicine created in the United States. This series is designed to enhance the practice skill of primary care physicians and residents who would like to provide better care to their adult patients with developmental disabilities.